Showing posts with label Products. Show all posts
Showing posts with label Products. Show all posts

Sunday, February 8, 2015

Feeding Tube Awareness Week



Today is the start of Feeding Tube Awareness Week!!

This is our first year.

Nathan just got his G-Tube on June 24th, 2014.

My favorite part of being a Tubie Mom is this ......... all the crazy mistakes that happen.

Okay, I'm lying, it's my least favorite part.

But seriously - how many times do you need to "forget to close the med port" before you learn??? How many times does it take to be BATHED in medicine before you finally figure out you have to check it ten times (literally) before you pour the meds in. And when the med ports take on a mind of it's own and opens on its own...


I mean - REALLY??? Then let's throw in the beeping in the middle of the night of kinked lines because they are laying on or wrapped up in the tube .... or the random mystery problems with the pumps.... or how about things are just not working and you just ... can't ... figure... it ... out.



Really - my favorite part is how well it's working for Nathan. Probably too well.

Nathan - June 24, 2014 - right before G-tube Surgery

Nathan - January 2015


Nathan's weight - June 2014 - prior to surgery .... (bottom weight is his brother Keadyn's)


February 2015 weight for Nathan .....

It's made a HUGE HUGE HUGE difference for him!!!


There are a lot of sites for Tubie kids accessories.  We got our first pads through Patchwork Peddler (link for free sample! and leads to their website) and even though we had trouble getting our initial order - we got it and they made up for the mistake :)  Which we were grateful for :)  These are amazing pads!  They are super soft on the inside (against the belly) ....   we also had fun doing trial and error washing them - because we don't have a washing machine.  So I had to learn to wash them by hand, without using fabric softener.  (Because fabric softener can actually make it less absorbent.)


Tubie Friends is an amazing organization which will send your child a stuffed animal with a G-tube (or JG-Tube, and other medical procedures) ... to make things a little easier.  We got Nathan one prior to his surgery.  You don't get to pick out the animal, it's a bit of a luck of the draw.  This is Nathan's though, he named it ARMY.
And if you homeschool you can use it for a science project!!!  Try to suspend the medication!!  I kept failing ...... not that failing isn't freaking cool too ....


But one night I got it!!!!


There is the million supplies that come with having a Tubie!!  

But it's all about the attitude!!  Make it fun!!  Keep the smiles going!!!




It wasn't an easy first 7 months ....   but it has really been worth it!

And we have fun with the bags!!


Monday, December 2, 2013

Dear Leap Frog ........... I'm NOT happy ... *Update*

.(If you read my regular blog, this is shared on there too) 

This morning I called Leap Frog Customer Service.  Kaedyn, who LOVES playing the Jewel Train application on his Leap Pad was complaining it was no longer there.  So I looked, and sure enough it wasn't on the device OR the software I could load up off my account on the computer.

So riddle me this......... why?

 Playing their Leap Pads

I told him I would call them this morning and get it fixed.  So I did.  I called ...... and the call was completely frustrating.......  left me completely unsatisfied....  and an unhappy customer!   So I posed a letter to them and promptly sent it to the customer service email they have listed.

Our devices ......


I warn you – I am one very UNHAPPY Momma right now.  But I'm not one of those crazy yelling emailers.  I just want to bring to your attention why I am unhappy in hopes that MAYBE you can still help me or at the very least, bring to your attention how wrong this is. 

First off, I want to say that we generally love your products.   We managed to scrap together two Christmases ago to buy TWO Leap Pads (ones) ….  We got the warranty on both – which we were very thankful we did, because we ended up having to return our Leap Pad Ones and used the refunded money to get Leap Pad Twos.  We have had ZERO problems with the Leap Pad Twos.  They lovingly call them their “iPads” … it’s cute.  

My boys love to play on the same game – at the same time.  So buying software off the site has been great for us, as an option – because we can share that between both devices.  However we do have increased issues with the game cartridges.  While I have your attention, I would love to suggest that there be a way to register the cartridges you BUY on the site, so that you can have them as downloaded software if wanted, or needed.  Like when my Autistic son sucks on the cartridge instead of putting it in the machine, or he spills his drink all over it, OR they lose it all together in the depths of the couch abyss.  But that’s just a suggestion. 
So onto why I am one UNHAPPY Momma.   I have four kids all together.  Two of which have complicated medical needs.  I have a husband who lost the ability to walk in 2011 and hasn’t been able to get a job since.  Now that he can walk again, they discovered he has some rather major issues with his spine.  My days are filled with driving everyone around, various medical appointments, a lot are one to two hours away.  The little bit of money we have has to stretch far and wide.  I have to make it work. 

So my five year old – who is a math wiz! – was asking me why his train game wasn’t on his Leap Pad anymore….and so I look, and sure enough, it’s not there.  He’s talking about Jewel Train 1.   And while I’m looking at our software, I realize that the Dinosaur e-book we had gotten for my autistic son (because he LOVES dinosaurs) is also not showing up. 

These were both the free applications we got when we initially got the Leap Pads.
So I spent some of the little bit of money we had to get them a couple more things – including Jewel Train 2 and some ebooks to tide them over until I could call you today.  (It being Monday – December 2nd, 2013 ….. after the long Thanksgiving weekend). 

So I’m on the phone and I’m explaining to the guy what is going on.  After being put on hold twice for long periods of time, he comes back and assures me they are on the account.  So I plug in one of the Leap Pads and I am looking at it, and I’m telling him, it’s not there.  So he puts me on hold a third time, and comes back and tells me the following………

I cannot access them anymore because they were free applications and can’t be shared. 
Excuse me?  

We loaded up BOTH applications on the Leap Pad Ones ….  And I am pretty sure they were on the Leap Pad Twos when we first got them because I know he was playing the Train Game on his a couple months ago.  But I recently updated everything the other day ….. we had gotten a couple of game application cards to receive software off the site on Black Friday and I was loading the stuff we bought with that on the Leap Pads ….. and so both Leap Pads had to update. 

It seems to have disappeared from that point.   That’s when he realized that the train game was no longer on there (Jewel Train 1). 

So imagine my surprise when I was told that because we got the two items as FREE applications when we first got the original devices, they were no longer available to us. 

This is wrong on so many levels.   I was told I have to purchase these applications in order to be able to use them again.  Well, I don’t have money to purchase them again. I should have used the money I did on other things, like gas or food as it was.  But I decided to splurge on them a little and get them a few new things for them to play. 

My kids love their Leap Pads, and it really really saddens me that this is the type of customer service we got.  The only thing I was told was “I’m sorry for the inconvenience.”   He said sorry about ten times during the call.  For the waits while I was on hold, and when I became irritated at the line he was giving me about them not being available to us anymore. 

Basically he’s saying ….  the FREE applications are only free for a while, don’t expect to always have them.  He said they were like “trial” applications – which wasn’t true.  They were the full applications as far as I knew.  He didn’t use the word trial, I think it was starter.   Both these applications were on their devices until the update I made on them just a few days ago.  I called your company to solve a problem and was left hanging with “sorry for the inconvenience,” which – let’s face it – is just a slap in the face. 

So now I get to explain to my child that even though Mommy said she would have it fixed today, she can’t fix it because your company said no.   Then I get to deal with his disappointment. 

I am writing this email in hopes someone who knows what they are doing can help me – just because it was free initially doesn’t mean you can just take it away.  That’s rude, and wrong, in my opinion.  I want to bring to your attention that this isn’t a very good customer service policy.   AND I want to tell you that at 7:30 am this morning, I would have recommended your product to anyone.   Now I am going to publish my experience, and this letter on my blog.  By 8:30am this morning, I’m not sure I would recommend your products anymore.  Frankly, those who cannot make a costumer happy by figuring out a way to correct a situation where they have the applications that they already had, even if they were FREE …  isn’t the type of customer service I want to deal with.   And I’m sure other special needs families would feel the same way. 
In case you would like to look at our account, it’s under the email address (email addy here).  If you are going to reply to me, please direct it at (email addy here) since I no longer use my aol email. 

In kind regards,

(my name)

So I thought I would just add the update on this entry.   I did hear back from Leapfrog and it did NOT make me a satisfied customer in the least ....

The Jewel Train that you mentioned on your first e-mail is a starter game, not purchased and these are not transferrable to another handheld.

If the app you are looking for was purchased and is not yet installed on a maximum of 3 apps, this should show under the On This LeapPad tab but if it was a starter game or included, it will not show on the On This LeapPad Tab.

Jewel Train (virtual) Starter Available 10/30/11 18081E00010B060A88A4 

The status of the Jewel Train is starter which means that it was not purchased. If you can provide us the order # or any proof that you purchased this separately, we will be glad to double check this for you. 

Should you have further queries, please let us know.

So in other words....... the fact that we had to replace my son's leap frog -we no longer the the "starter addition" of the Jewel Train EVEN THOUGH it was on the same device I was trying to put it on, just a mont or two before.  It wasn't until the UPDATE that the Leapfrog went through that seemed to make it disappear.  Whatever.  It's a good thing my kids love the product ...  or they would lose a customer for bad customer support.

(Rolls Eyes)

Thursday, July 25, 2013

KideCals!

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We got our KideCals in the mail a long time ago .. and get to share what we created :)
This is the bright fun large envelope it came in!

Our phone numbers are matrixed out.  But this shows the sizing of them.  I have to admit, I was a little bit disappointed cuz the small ones are tiny and hard to read.  Reminds me of the old Walmart packages where they gave you the teeny tiny pictures as "wallet size" ...  I remember I got so mad.  But this was just a little disappointing.  But it's all good :)  We'll still use them.  And beyond excited to have them!!

Here is a close up ... with our numbers matrixed out again ... 

YAY!!!  I need to put some in my bag for him.  So that I can put them on him when needed.  

Just wanted to share our finished product! 

Friday, May 17, 2013

Another AWESOME Product!

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Have you ever wanted an amazing label?   Perhaps to announce an Allergy?  To put on Autistic kids when you are in a crowded area where you might be likely to lose them?   I know that was my first thought when I saw this product!!

I can put that on Nathan and have it say something like....   "My name is Nathan, I'm Autistic, If you find me lost, call (our cell # here)."   It could - literally - be a life saver!!


As you can see - there are a ton of FUN products that they have!!   Here are a few examples I liked a lot!






They have fun stuff like.........

And Keyboard Stickers........ I donno about you, but I wear the letters off my keyboard all the time.  As a writer & blogger, I am at my computer a lot .. the first letter to always go for me .... N....  Ha ha!

KIDECALS ARE ... 
  • Durable
  • Waterproof
  • Dishwasher Safe
  • Washer/Dryer Safe
  • Don't Peel Off
  • Personalize-able
  • Don't Damage Items
  • FUN!

Seriously - what more can you want!?!?
Personalized Kids Name Labels:
Do you have kids who HATE losing their stuff?   You can label anything from water bottles, to books, to toys,sports gear, whatever you can think of that might need to be labeled!   Perhaps you lend out books or DVD's ...  this is a great way to make sure that they get back to you!!  There are a ton of fun and trendy designs, and all the stickers are durable, dishwasher, washing machine AND dryer safe!!!  They don't damage the surfaces of what you put them on either!
Waterproof Labels:
Have you ever resorted to using a sharpie to label things?  Eventually you have to write over it again because it wears off, or even sharpie ink doesn't stick to what you are needing to mark!!  Well, these decals are waterproof!  The labels are extremely durable and stick to just about anything from clothes, to backpacks, to your computer!  They stay put during washing of any sort, and you can even label pool and beach toys!  
Fun Mustache Stickers:
Have you jumped on the Mustache bandwagon???  I have seen a lot of my friends doing this mustache thing!  They even have MUSTACHE stickers and labels!!  HOW FUN!!!  Use them for parties or just for fun!!
Organizational Stickers:
I am an organizer!  I want things labeled where I can see it - that way I can grab what I need and do what I need to do - without having to go through a bunch of folders or binders and notebooks!  Eazy-peazie!
Chalkboard Labels that you can write on:
Another HUGE thing - especially for homeschoolers!!!  How awesome to be able to use this for a quick and fun way to learn!  Also perfect for things that you have to change out!  Toy bins, art supplies... name it!  Stick it!
Daycare & School Labels:
Do you have kids in daycare?  Or in school?  Need to label EVERYTHING?   Done!!  They are super cute and safe!  You can put it on bottles, sippy cups, and even snack containers!  Diaper bag? Yep!  Blankets?  You bet!
Camp Labels:
Summer is coming up!  Sending the kids to camp???  This is perfect!!  You may not have a hope of getting everything back, BUT - slap the labels on and you have a lot better chance of it!  Especially when kids have items that are exactly the same or very similar!  There won't be any "That's MINE!" arguments with another kid ending up with your kids stuff!

Kidecals was created by a mom of two rough and tumble kind of boys!   This is an amazing product!!  I truly cannot wait to get mine in the mail :)

My readers will SAVE 15% off Kidecals!  Durable, waterproof labels!  Use the Promo Code: 
awesomelabels