Friday, May 18, 2012

Corey's Day on the Farm ~ 2012 (post 1)

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So ..... there is this amazing local event called Corey's Day on the Farm.  

(taken from the above link)

Coleta & Nick Corey of Silverdale, Wash., have reveled in the spirit of selflessness and giving back for the past 40 years. They are the founders of Corey's Day At The Farm, an event during which special-needs children can enjoy a day of horseback riding, petting farm animals, being outside, taking hayrack rides and eating grilled hot dogs. The annual event takes place the Monday and Tuesday following Mother's Day and evolved after Corey's special-needs son, Danny, participated in a “show-and-tell” at his school in 1968.

 It's geared towards kids who have unique medical issues... 


Autism is just one of the special needs confronted by children who come to the farm. Kids with emotional, developmental and physical problems are all welcome. Even youngsters in wheelchairs are hoisted up on the backs of the horses and given rides. Each school is responsible for deciding which students need and would benefit from the day at the farm and busses them out to the event.

 They work really hard at putting the event together.... 


The days at the farm involve work year-round for the former Department of Defense torpedo-builder-turned-embroiderer. At the beginning of the year, Corey sends letters to the merchants and organizations which have previously donated time, money, goods or all three, asking for their help again—and she rarely gets turned down. Corey's Day At The Farm won her Bridgewater, N.J.-based, Brother International Corp.'s first “At Your Side” award for community service in June. It has become a community event that the children look forward to from the first day of school, and that breaks down the walls which sometimes separate people from the truth about what it means to be a special-needs person. Some of the uncertainty about how to handle special-needs people, especially children, is lost by helping at Corey's Day At The Farm. After working the event, volunteers understand that all it takes to make a disabled person's day brighter is a simple “hello.”


Be sure to click on the link and read the whole story!!  I only shared a little.... 


We went to the event last year.  Nathan & Kaedyn's pre-school went on a field trip there - I had no idea what to expect.  Dennis and I took the boys (Nathan and Kaedyn) and were so surprised ... especially with Nathan's apparent looooooooove for riding horses.... 

Pictures from 2011  .... YOU CAN READ ABOUT IT HERE







Kaedyn didn't care for it too much - he liked to sit on the side lines and watch .... 


We had gone both days because we *thought* our son Noah was also going the day after the babies had gone.  So we went there looking for him to get pictures of him enjoying the day - with no luck.  He hadn't gone.  Which was disappointing for him, and us.  We thought it was equally important for HIM to go too with all his medical crud going on....   

So this year, we made it a POINT that all three of the younger boys went.   We had the additional challenge of Dennis being in a wheel chair this year too.  

 Kaedyn was trying to help Daddy go while Nathan was along for the ride....  
 Noah at his FIRST Corey's Day on the Farm.... he's excited!!

 Nathan and Noah ....   Kaedyn, of course - wouldn't put the shirt, hat, anything on... and didn't want to be in their momento picture....

 Daddy and Kaedyn watching Noah and Nathan get their pics done...

 Noah the Cowboy!
 Nathan the Cowboy!
 Nathan the piggy!!  LOL....
Nathan and Noah...... 



Be sure to check out the other installments of our Corey's Day on the Farm series ... check out the beginning of our day!

Corey's Day on the Farm ~ 2012 (part 2) ... First Horsey ride of the day ....
 Corey's Day on the Farm ~ 2012 (part 3) .... Second Horsey ride of the day .....
 Corey's Day on the Farm ~ 2012 (part 4) ....  Hay/Tractor Riding ....
Corey’s Day on the Farm ~ 2012 (part 5)  ….. Petting Zoo
Corey's Day on the Farm ~ 2012 (part 6) ...... Eating!!
Corey's Day on the Farm ~ 2012 (part 7) ...  Ropin’ Fun ... 
Corey's Day on the Farm ~ 2012 (part 8) ... Horsey Rides 3 thru 6 ...

Many Faces of Nathan .... May 2012

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It's been awhile since I've done one of these posts ..... so I thought it was due time....   so without further a due....   these were taken over the last 30 days...

I'm consecrating ...
Sucking on my Shirt & Giving myself a bath at the same time! TALENT!

Big Mouth

Look I have a tongue

Ooooooooooooooohhhhhhh

Now you see it down

Now you see it up
Can I touch my nose?

I'm done, zoomed off to my little world....

I'm cold!

Can I see through the pen?

I'll smile but only for a second - I hate the DR's office

Have I introduced you to my little friend?

How about my long friend?
my rounder long friend?

ARE YOU LISTENING TO ME?

I'm going to ignore you now

Ignoring....

Still ignoring!!!

I liiiiiiiiiike pink glasses

AHHHHHHHHHHHHHHHHHH!!!

I can be a puffer fish......

Christian ... An Amzing Cleft Lip & Palate Story

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A friend of mine posted this video on my facebook early this morning......

I watched ... and cried....  I *know* that feeling.......   I soooooooooo KNOW that feeling....

I saw another video posted by her... Lacey, Christian's proud Mommy ....


I looked at this and I thought ... WHAT AN AMAZING FAMILY!!   And I related.   So I found Christian's Fan Facebook page, and I *Liked* it..  and I sent her a message. 

I told her a little about my family - about Noah and Nathan - and told her I felt the need to reach out to her.  She's not alone.  There is a whole community of *US* out there ..... sometimes, we're just hard to find.

Christian is amazing ....... he was given the perfect family to love him and help him thrive.  PLEASE SHARE Christian's Story!!!   You can read his blog here at LEADING THE BLIND.



Avery's Bucket List

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 My Mom posted a video on her facebook on April 30th 2012.......

......... I didn't see it for several days .... but when I did, the story inspired me.



 This news special was posted at 10am on April 30th.....

I found their blog .... Avery's Bucket List .... I thought - I am going to SHARE this on my blog - more awareness for this child...

And today - as I'm really looking at the blog....... I see ....... she died the same day her story broke. (This is taken from her blog, posted May 1st, 2012)

 Avery Lynn Canahuati 11/11/11 - 04/30/12 
 Hello everyone this is Avery's father. Avery passed away yesterday sometime around 3pm due to pulmonary complications related to SMA. In short, one of her lungs collapsed and she went into cardiac arrest. I immediately performed CPR on her and was able to bring her back to life, but only for a brief period of time before she passed away shortly after arriving at the hospital. Avery's passing this quickly came as a complete shock to all of us, as she had just been given a thumbs up at her last doctors appointment only three days ago. While we were aware of the severity of her diagnosis, we never lost hope for Avery and even in her passing, we still have hope for our daughter and all of her friends. I'm going to share a note Avery gave me back when all of this started, but made me promise not to open until I knew the time was right... (read more by clicking the above link)

A Video to Honor Her....

 Avery Canahuati, the 5-month-old girl who captured the nation's heart with her family's embrace of life despite a devastating diagnosis, died Monday of complications from spinal muscular atrophy (SMA). The disease is the number one genetic killer of children under age 2 in the U.S., with 1 in 40 Americans carrying the gene that can lead to the disease.

Please keep her family in your prayers.  Share her story!


Tuesday, May 15, 2012

4 Boys and Dental Care....

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All four boys recently had dental cleanings and check ups.......

 In the NO CAVITIES club was ......... 
NOAH ........ 


YAY NOAH!!!!!

Nathan and Kaedyn were too but - they have caps....... not sure if that really counts - cuz if they had cavities, the caps would be pointless......

Soooooooooooooooooo ....

Calahan wasn't on that list.  He has some cavities ... two I guess.. and needs a root canal to try to save a tooth - he's not happy about that, just wants it pulled.  He refuses to deal with the drill and stuff - anxiety - sensory issues somehow....  just...... won't .....  do ..... it..... 

Literally - last time he had to have cavities filled, he had to go under general........ not kidding.   There were plenty of attempts made to fix them - but he made them stop every time. 

EVERY TIME........ 

::: sigh :::

So I call the place, finally - to get him an appointment ........ and I get this BS ...... "We'll call you...." 

They said that they wanted it done right away - and it's already been several weeks....  yeah....

Makes me want to scream not so lovely things in the phone. 

Now, back to Noah .......

Noah is part of the no cavity club - has been for awhile.  Dennis swears it has to have something to do with his genetic disorder ... LOL....  

He has shark face ..... mouth........ teeth .......... shark teeth .........

He has a lot of problems going on .....

1: He has BIG adult teeth

2: He has a tiny jaw

3: Over crowding and NO ROOM

So instead of his adult teeth pushing his baby teeth out - they are just finding new spots to go...
(OMG please ignore his crusty morning mouth and hairy teeth - I caught him prior to brushing)

He has a dead baby tooth (since he was 2 and fell against a coffee table, damaging the nerves in the left front tooth and chipping the right one) ..... 

So they suggested we get in to see an Ortho - ASAP ......

So I went by gut, called an Ortho who does free consults ...... no one takes his insurance .... and this is the x-ray (from last year) that the Ortho showed me...
This is a panoramic x-ray.  Let's address the lower jaw first - since that's easier.   The left eyetooth (next to the adult front teeth, but still down in the gum line) .... is completely underdeveloped.  The upper jaw he has teeth turned completely sideways from what they should be (or at least one tooth) and you can see way up top - he has teeth going in sideways - as in - completely impacted .... 

He needs help... and soon :(  

Makes me sad.   And insurance won't cover it - so I don't know what to do....    still working on that.

So, to end - I want to share some pictures of my brave boys who BOTH sat in the dentist chair for the FIRST TIME this last week.....  YAY NATHAN AND KAEDYN!!!   They did GREAT!  Especially Nathan - there was no fighting on his part, Kaedyn on the other hand....
Playing in the waiting room - Cal, Nathan & Kaedyn

Nathan being a BIG BOY in the chair all by himself!!!!

Kaedyn interested in what she's doing .... as long as it's not about him

Kaedyn playing during Nathan's exam and Cal reading

PINK GLASSES

GREEN GLASSES
Reason I didn't get any pictures of Kaedyn in the chair was because I had to straddle the chair while he was in it so that he'd get in it - and even that took a lot of convincing! LOL