On this page is Noah's Pregnancy Milestones. NICU Updates .... His weights through his first year. And Milestones after coming home for a few years ....
July 6 - PREGNANT - blood test positive at DRs
July 9 - Positive Home Pregnancy Test at home...Mom's still in disbelief
July 17 - FIRST ultrasound - saw sac but nothing else
July 26 - 2nd Ultrasound - SAW BABY & HEARD HEARTBEAT!! Heartbeat was 107
August 15 - First Appt (with RN) History and tests done
September 7 - Appt with DR B cause I haven't been feeling well - tried to hear the heartbeat with the Doppler - but couldn't find it :(
September 12 - First "OB" appt - Heartbeat was caught from the outside!! Rate at 158
September 27 - AFP test
October - feeling "Light" kicks :)
October 9 - Dr Appt - AFP came back positive for both Downs Syndrome AND Spina Bifida - Heartbeat 142 ... the results left me scratching my head since one tests in the "high" area and the other in the "low" area... (The Results were ABNORMAL ... 1 in 165 chance that the baby has Down's Syndrome and a 1 in 98 chance that Spina Bifida)
October 11 - First HARD kick!!
October16 - 4th Ultrasound - Heartbeat 156
October 19 – Amnio, 5th quick Ultrasound Scan
October 30 - YOU'RE A BOY!! You have a rare genetic disorder called Mosiac Trisomy 16...Never forget - day changed my life forever. I sat in that room and heard him start talking - there are complications ... rare genetic disorder .... trisomy 16 mosiac .... BY THE WAY ... IT'S A BOY. The only thing I heard, it's a boy!... His name: NOAH ALEXANDER ... wanted him to have a strong name.
November 2 - Marshfield Clinic - Level II Ultrasound (5th) and Appt with Genetics Dept... ... They told me he wouldn't live, period. Suggested that I "interrupt" my pregnancy. When I told him no, even went as far as arguing with me about it. They said .... "HE WILL DIE IN UTERO, IF BY SOME MIRACLE HE DOESN'T HE WILL DIE SHORTLY AFTER BIRTH, AND IF BY SOME HUGE MIRACLE YOU GET TO TAKE HIM HOME - HE WILL BE SO MENTALLY AND PHYSICALLY DELAYED IT WOULDN'T BE WORTH IT."
November 6 - DR Appt - Heartbeat 150's - nice and strong as always :)
November 9 - 13 - NO MOVEMENT!!!!!! (little to no)
November 13 - Went into DR - Heartbeat 151 - baby is fine!! started moving again that night, lil stinker
November 17 - FIRST CONTRACTION/BRAXTON HICK - noticeable anyway..
November 20 - FIRST Kick felt by MOM on the Outside!! Daddy & Calahan still haven't felt though...
December 3 - Daddy FELT YOU KICK!!!!!!!
December 4 - DR Appt - Heartbeat 160's, you KICKED it while the DR was listening - Measured 25 cm (am 25 weeks)
December 7 – 6th Ultrasound, estimated weight 15oz, Heartrate at 167 (ultrasound results: fluid on the low end of normal, small placenta, asymmetrical IUGR – nutrients going to head, then organs, then arms & legs)
|December 7, 2001 - Noah's back with the umbilical cord resting on his (upper) side... looking over his shoulder.|
December 15 – Mommy SAW you move today! Could actually see her belly moving with your movements
December 16 – First contractions that hurt, came one right after the other – first trip to L&D. Not happy having straps on your home. Mom put on Bedrest/Limited Activities for the rest of the pregnancy.
December 19 – DRs Appt – heartrate of 150’s, 27 weeks and measured 27 cm
January 8 – Calahan’s SIBLINGS Class with “Baby Doll Noah” and also our first CHILDBIRTH Class
January 11 - DRs appt – 30 weeks, measuring 29 ½ cm, heartrate in 150’s – Noah is Transverse
January 15 – 2nd CHILDBIRTH Class
January 16 – BREASTFEEDING Class
January 18 - 7th Ultrasound – heartrate at 150, estimated weight 1lb 12oz – fluid is now normal!! Noah is now completely BREECH
January 21 –– Gluclose Tolerance Test – way late – but passed ---- DRs Appt – BP 140/86, 32 weeks pregnant, measured 29cm, Noah’s heartrate in 150’s…..first NST passed with flying colors in a half hour (NST commonly take 15 minutes to one hour) checked BP at end of appt was 145/91
January 22 – Received HOPE in the mail (TY Beanie Baby from Trisomy 16 Foundation)--- 3rd CHILDBIRTH Class – Instructor commented that 1 out of 6 of us would end up with a c-section, and to look around and try and figured out who would it be. I raised my hand and said it would probably be me.
|Last picture taken of me pregnant, January 2002|
January 29 – Full Moon – 3rd NST – BP 150’s/100’s L Protein in the urine - Contractions every 2 minutes – Noah has SEVERAL heart decelerations - DR is admitting me, gives me 1st steroid shot to mature Noah’s lungs in the office – can’t get the baby's Dad, so I call him. Admitted in the hospital, start 24 hr urine test, fetal monitor 2nd steroid shot given at hospital. Officially stuck in the HOSPITAL! 8th Ultrasound.
January 30 – Hospitalization – Noah had many heart decelerations and Mom’s BP didn’t get better through the night. 3rd steroid shot given in AM. Officially Pre-eclampsic- Not going home until after Noah’s born
January 31 – Hospitalization – 4 AM Noah’s heart decelerations are worse, they have my put on the O2 mask for 2 hours and put in an IV. 1 PM- Dr. comes in to do amino to check Noah’s lung maturity. 9th Ultrasound during Amino. Noah thought the needle was a toy and tried to play with it. Fluid came out a pale yellow. Instead of waiting the normal hour and a half for the results, we had to wait 10 hours. Found out Noah’s lungs were almost mature and there was biliruben in the fluid.
February 1 – Hospitalization – DR came in AM and told us he was no longer giving us the the choice of staying or going to better hospital 2 hours away – he was sending us. Transferred to Marshfield’s St. Joseph’s Hospital. 10th ultrasound was given, baby’s weight estimated to be 2lbs. Blood tests taken. DRs discussed, and came back with the news……. Emergency C-Section, NOW. (The Placenta was failing)
Noah Alexander was born February 1st 2002 at 3:45 PM
1 lb 12.2 oz ~ 13 ¾ inches ~ 26 cm Head Circumference
APGAR 4 @ 1min ~ 8 @ 5 min
|February 2, 2002|
(Mom) Hypertension... Pre-Eclampsia ... Limited Activity to complete Bedrest, (Delivered via emergency c-section)
Complications at Birth: Low Micro-Preemie Birth Weight, On Vent for 40 hours, Brachycephaly craniosynostosis, enlarged right kidney, ASD & VSD (3 holes in his heart all together), eye pupils shaped like footballs, Hypospadious, Natural Circumcision, Hyperbilirubinemia, he had both Apnea and Bradycardia (Brady’s he had, Apnea he didn’t start until a few weeks before his due date)... Brain scan at one point showed some fluid on his brain that was later declared a "variation of normal", umbilical & double groin hernias ...
NOAH'S NICU UPDATES
Friday - Feb 1st
Noah Alexander - born 2-1-02 at 3:45pm. 1lb 12.2oz (that .2 is a BIG deal with micropreemies - which he is by size, but not by date) 13 3/4 inches long.
He has small holes in his heart - 3 of them. His heart murmur is being recorded as "loud"... :( His aorta looks "thick" and "stiff" functioning - this COULD look like this just because of his size. Hypospadius, the foreskin on his penis didn't completely grow - he has a natural circumsision - and the urethra is on the underside instead of on the tip - this can be corrected down the road with no problem. ** All of these things could happen to a "normal" preemie, or even a full-term baby! Nothing is concerning yet - and they are just going to keep an eye on things.**
He's on the Ventilator at 30 assisted breaths per minute when Keith, Mom, Grandma & Calahan went to see him at 7pm. He's on 20 ABPM when Mommy sees him at 9pm. Whooohooo!!!
Before we all saw him - everyone was commenting on HOW CUTE he is - everyone would walk into the room and say it... you gotta start believe it when you hear it so much. LOL.
He has an umbilical cord catheter (where they put an IV line in the blood vessel in his cord.) And has a tube in his nose for oxygen. Being less then 2lbs out 33 weeks is very concerning. His heartrate & blood pressure look good for being 7 weeks early. He has to lose his waterweight before he can gain. Noah will have to show what's going to happen...
A piece of his cord blood, and placenta were sent off for genetic testing.... results should be back in 5 to 10 days.
Saturday - Feb 2nd
Ventilator at 15 abpm in the AM............. at 20 in the PM............. on a mode setting overnight that lets him completely breath on his own (for 8 to 12 hours) if he does well... the vent can be taken off!
LOW BLOOD SUGAR in the PM
Pooped his his diaper!!
Daddy got to hold him - he picked him up when his bad was being changed... he only lifted him up in his bed.
Mom got her cathater & IV pulled out - FINALLY!! Almost fainted when she got up in the morning for the first time (after being in bed for 5 days!)
Lots of visitors came!! FireAnt being one of them :) (FireAnt is one of Noah's Godmothers!)
Nana's BIRTHDAY!! & Mom & Dad's been together for SEVEN YEARS TODAY!!!
Sunday - Feb 3ed
AM - OFF THE VENTILATOR!!!!!!!! We got to hold him and hear him cry for the FIRST TIMES!!!!
Blood sugar was a little better - but still jumped around a lot during the day :( His poor little heels are getting bruised :(
He weighs 1lb 13.7 oz!!! BUT he still needs to lose the water weight.
Mommy changed his diaper.
Mom & Nana held him in the PM.
Daddy & "FireAnt" were up in the morning....
|He was playing with his lead wires with his toes|
As for changes.... he's now on 12cc's of breastmilk a day!! (He was upped from 10cc's to 12 yesterday morning!) They took him OFF his IV!!! He's on full feeds ... they are suppose to be adding some powdered fortifer to his milk today, to make up for those vitimins and stuff he's losing by not having the IV. His Bili is better again - he just came off the light yesterday - so we'll see how that goes, but I won't be shocked if he does end up on the bili blanket again. ... just talked to the DR... he says nothing has really changed, He's starting the Human Milk Fortifier - it adds vitaimns, minerals, protein, salt and other stuff he needs today... and if he handles what they give him today, well, they will increase it to full tomorrow and he'll be getting everything he really needs then. Otherwise everything is doing good - I keep forgetting about asking about his bili level.... so, I'll have to get that next time I call.
I have to tell you all a funny story from my shower... then I'll shut up........... my babyshower was this past weekend.... and we had this one game, where you guess how many jellybeans are in a bottle - well, I'm using playtex ones, so it's a little tougher to guess. (heehee) So I told Keith to guess first, he guessed 134, and he thought he was HIGH.... and I sat and thought and thought... and finally wrote down my answer... 212. So, Julie, my friend who threw me the shower, came down to check my answer... and she kinda shook her head at me... LOL. Then she goes upstairs and yells "We have a WINNER".... and I'm going huh? So I go upstairs... and my Mom is saying that there were 212 in there, right on. I just could have died laughing!!! Why did I guess 212? Well, I'm psychic of course!!! Those who know me, know I do strange things like that!!! Kinda like the whole "I have to pack my bags" the week of the 20th, "Cuz there is a full moon on Monday and if I don't get them packed, something is going to happen!" And sure enough, they were half packed and that's when all the trouble started!! So, why did I really guess 212?? Because - it was in honor of Noah!! His birthday was 2-1-02... get it? 212? :)
Friday, February 22, 2002
Sunday, February 24, 2002
Tuesday, March 12, 2002
Noah's fluid on his brain
Wednesday, March 13, 2002
Noah is HOME!!!!!!!!!!!!!!!!!
Wednesday, March 20, 2002
Noah Update 4-8-02
Monday, April 08, 2002
Noah's Weights for the FIRST YEAR of his LIFE ...