Well - seems everyone is feeling better... we're really hoping it stays that way... Nathan has been a bit off the past couple days... very crabby ... He just seems off to me... I cannot even really put my finger on it right now...
I have just spend the last hour calling different clinics and numbers and - ugh - trying to get some appointments made....
1: Neurology for Nathan - made - FINALLY got one in E.C. so I don't have to go 2 hours away... for Valentines Day - of all days....
2: Audiology for Noah - I called the Audiology dept he is seen in, 2 hours away - in order to get another hearing test made... after explaining that his hearing has gotten A LOT worse the last few months, and that I think another hearing test is needed... we're constantly hearing "What?!" "Huh?!?!" from him ... we've had to yell and talk slowly to him after a few times of that, even though he's about a foot away from us, and then he finally hears. That and he's got his TV turned up to 35 a lot - and this - 20 feet away - can be heard loud and clear in the house... seriously - from his bedroom in one corner of our house, and me sitting in the chair in the oppisite corner, I can hear it. When in his room, his TV can be heard great at 15, on the loud but not TOO loud side... Obviously - it's a need .... and then I get the "He just had a hearing test in February, with your insurance, the request needs to come through his DR" ... are you kidding me!?!?! UGH!!
3: Nutrition - for Nathan's lack of weight gain - which is actually tomorrow. What time? I don't know... I maybe calling that clinic to find out - usually they call the day before to remind you though.
4: Cleft Palate Specialist - for Nathan ... of course.... I called awhile back in order to get a referral to one of the Children's Hospitals... so when I called the PEDS office to talk to them about the referral for Noah for Audiology, I brought that up... that I hadn't heard anything yet... the nurse I talked to was the one I spoke to then (a month or so ago) and she remembered talking to the DR about (it's a small clinic - and although we are a big town, my kids are pretty well known there) ... anyway .. she told me to call the referral department and see what was up... so I called, and they said "Oh well the referral for Dietary came through and that appointment is actually on January 4th, which is TOMORROW" she said all excited... I interrupted her.. "No no no ... see he should have another one in there for a Cleft Palate Specialist... " ::sigh:: Long story short, they never got the referral... SO calling the clinic again ... the receptionist says "Oh well he's seeing DR. Moore here on February 14th ..." I said ... momentary brain fart ... "who's that? OH" sudden remembrance... "That's Neurology" then had to go into the whole spiel again... so then "which nurse was it you talked to?" ... ah.... "Penny?" I said half way confident... I think!?!?! ... Anyway I get transferred back to Penny and I talk too fast man.. LOL... anyway - she says "Okay - I'm so sorry about that, I know I spoke with him about it," so she was going to get that one back there too. OYE....... VEY........
:::: just BREATH Momma ::::
Anyway ... I still have to make a urology appt for Nathan for his hypospadious... to talk about the surgery and such (wahhhhh)
Seriously though - WHAT do you do when you end up being referred to a DR from another country with a heavy accent where they seem to understand just enough English to get by. Now don't get me wrong, I love diversity - however, when it comes to my child's health care, I NEED TO UNDERSTAND WHAT IS GOING ON!! So the DR that he was referred to for the Cleft Palate/High Palate issue... came up to see us that NICU before we left (yes back in May) ... and I could not understand him, I asked him to repeat himself more then 10 times through the whole conversation. And he seemed to have a hard time understanding me. Anyway, I just wasn't comfortable with him - so I avoided those appointments with the plan that I was going to ask Nathan's PED to refer him someplace else... but kept forgetting... lol... and now they dropped the ball... will it ever end?!!?!?
Let's see... other then making appts all morning - which I'm still working on ... I also called Nathan's Nurse (got her voice mail) so she can come check his weight and the Birth To 3 Coordinator to talk to her about up'in his therapy... (right now he's only getting OT for about 40 minutes, once a week) - which he has tomorrow at Noon - I am going to get up to wash bottles here in a few minutes... as soon as Nathan takes a nap I'm going to take a shower and get dressed... I've gotten a load of laundry done (in the washer) that I have to go throw in the dryer and then another in the washer... and I have a TON of freaking paper work that I have to do for Noah's evaluations at school coming up.. for his IEP meeting on Jan. 23
Oh and I just got the reminder call for Nathan's appt tomorrow - it's at 2:40
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