Wednesday, May 20, 2009

Notes On Noah... Please Read!



For those of you who are not familiar with Noah's story, my one pound twelve ounce miracle born with a rare genetic disorder, who I was told wouldn't survive pregnancy ... you can find his Pregnancy And Birth Story on this blog, and you can also go to my other blog and read an article I wrote about him called AGAINST THE ODDS which is also featured on the Be Not Afraid Website (to get to it you click on STORIES and then TRISOMIES AND OTHER RARE MOSIACISMS and then on AGAINST THE ODDS it will look like this ... (I removed the writing other then the menu)


Then you should see ....


Anyway ... Noah has had a birth mark on the side of his head since birth... (duh it's a BIRTH mark) he also had port wine stains on his face. Nathan had the port wine stains also. Anyway - I noticed rather recently that the center of his previously flat oval birth mark (about 1 cm by 1 1/2 cm) has risen in the middle ... this is my sad attempts of trying to get it in picture



So being stupid I looked up skin cancer...

Symptoms


Early signs

The most important warning sign for melanoma is any change in size, shape, or color of a mole or other skin growth, such as a birthmark. Watch for changes that occur over a period of weeks to a month. Use the American Cancer Society's ABCD rule to evaluate skin changes, and call your health professional if you have any of the following changes.4
  • A is for asymmetry. One half of the mole or skin growth doesn't match the other half.
  • B is for border irregularity. The edges are ragged, notched, or blurred.
  • C is for color. The pigmentation is not uniform. Shades of tan, brown, and black are present. Dashes of red, white, and blue add to the mottled appearance. Changes in color distribution, especially the spread of color from the edge of a mole into the surrounding skin, also are an early sign of melanoma.
  • D is for diameter. The mole or skin growth is larger than 6mm or about the size of a pencil eraser. Any growth of a mole should be of concern.
Signs of melanoma in an existing mole include changes in:
  • Elevation, such as thickening or raising of a previously flat mole.
  • Surface, such as scaling, erosion, oozing, bleeding, or crusting.
  • Surrounding skin, such as redness, swelling, or small new patches of color around a larger lesion (satellite pigmentations).
  • Sensation, such as itching, tingling, or burning.
  • Consistency, such as softening or small pieces that break off easily (friability).

And wasn't happy.

Stupid. I've already made an appointment and all that will happen is he'll be referred to a dermatologist and from there who knows - I know there will be a biopsy in the future which will be the end of Noah's world (because he's terrified of anything DR related). I am really scared. The places we know where his disorder is, one of them is his skin. The philosophy we have to live by, anything can happen at any time with any organ... it's in his skin. I'm scared. I'm trying SO HARD not to think about it.

So I ask you - if you pray, PLEASE pray. If you don't, do whatever you do. Positive thoughts... nothing but good news where this is concerned. It's bad enough one of my best friends is waiting for biopsy results. It's bad enough I went through a leukemia scare with Calahan when he was 2. Now I'm having nightmares that something is going on in my miracle man.

I got too comfortable with everything, I started to only think about it really when he got sick. I started to only have the panic attacks when he got sick. Now - I'm trying not to think about it and I'm trying to be positive. But I can't push away the fear.

6 comments:

The Maven said...

I'm sure you're very worried, and I can't blame you. As moms we worry about everything, big and small. That's our job.

All you can do is what you're doing. You found it, you researched, you made an appointment and now you wait. The waiting is the hardest part, I know.

I had a lump in my breast. It had some signs of being cancerous and some signs of being just a cyst. I fretted and cried and felt terrified and ran through every horrible scenario going for MONTHS. End result? A cyst. Nothing more. And most of them are. We hear about the worst things all the time, but we don't hear about the majority of cases where everything is okay, you know?

Chances are, everything is okay. The odds are in his favour. Until then, I will think good thoughts and keep you guys in my prayers. Stay strong, mama. He needs you. *hugs*

kiddiescorner said...

I will be praying and I hope everything is just fine. Hang in there.

shelley said...

as usual noah and you are in our thoughts and prayers! keep us posted! sending hugs to you and your family!
shelley

The Knutson Klan said...

Praying for you! Just wanted to tell you to not get too scared just yet. kylie had the same sore of thing happen with a birthmark on her back. they removed it and found out it was nothing. Most of the time these things are nothing to worry about. I googled too, and freaked myself out worrying!

COUNTRY MOM said...

Annissa, Sorry all this is going on. I am still waiting on my sons last round of biopsys. He had 5 done this last time. You are a great mom and getting it checked out is the best thing. If you ever have questions lmk. You and your family are in my thoughts and prayers. ( btw, I cant access your main blog).

MommaD said...

Praying for you and your boys, it seems like you can't catch a break! Hopefully things would not be as they seem! In the meantime concentrate on the positive...like way to go Nathan with the weight gain!!