MRI, Neurology (all Nathan) … Endocrinology added (Nathan)
Sorry I didn't update right away last night (written 4-18).... I was so tired :( I still ended up being awake until almost midnight.
Anyway .... we left the house at 6:45 am ... getting to the clinic at 8:30...walking back out the door at 5pm, getting home at 7pm. Oye!
After Nathan woke up, we were basically told we'd have to go back to our original appointment (the DR had a conference or something until 2) ... so we walked up and down the hall outside of Neurology while Dennis sat in the playroom with Nathan ... Kaedyn was tired, was the only way I could get him to go to sleep... so after he did - it was a little bit before we got called back.
Basically - Dr. M said that the MRI came back good - there was no signs of hydrocephalus and his Dandy Walker was still stable (whew!) but when she had run the labs, checking his hormones and other stuff... his thyroid level came back showing hypothyroidism, but since it was just one blood test, and slightly elevated, she wasn't sure if he actually had it and it can be a sign of migraines (which we have been suspecting) ... so she decided that she wanted us to see the Endocrinologist right away and talk to him about the Growth Hormone and so he could keep an eye on him starting the migraine med that she was going to start him on. She decided to go with a med that one of the side effects is to make you more hungry, and hopes he gets that side effect. He's starting out at a tiny bit once a day for a week, then the same tiny bit twice a day for a week, and then the following week doing it three times a day which is where we'll be at. She wants me keeping a migraine diary for her too, for him. So I asked her about my suspecting Autism and when I handed her the list I had made up, she nodded in agreement and said, she agreed and he is showing a lot of key symptoms. So she was putting in for an assessment at the Autism clinic - which will take a few months to actually happen. So I'm going to keep that diary along with his migraine one. She called Endocrinology and we couldn't see him until 4pm - so, we were stuck there for awhile longer.
HGH is a daily injection so that means that Dennis and I will have to learn to give it to him.
At this point..... I really just want to know what else this poor kid could have wrong.
And it's driving me insane that when I was pregnant with Noah and we found out about his MT16 I was told he would be so mentally and physically delayed it wouldn't be worth it, and was basically made to worry - and with Nathan, when they discovered the cyst and 2-vessel cord at the 20 week ultrasound, they told me "not to worry" that "everything would be fine" ... and now he has this coming up and that coming up and more diagnoses and more things going on then Noah EVER had. Noah was in the hospital more, but I feel so bad for Nathan.
When we tried to pick up the medication for his migraines - we were told they had to order it, so we asked them to send the prescription to the pharmacy at home, and we'll go through them.
Basically - that was it. By the time all that was done I had two very tired babies...